Wednesday, January 29, 2014

Updates! California-Cancer-Chemo...

Even though I received a “talking to” back in September about the infrequent N&B blogs over past year, I still went ahead and let three months pass since the last blog (I say ‘I’ vs ‘we’ because it was my turn to write next).  I’m not going to be hard on myself and I’ve already given myself a pass for the delay. ;-)

For this blog, I figured I’d provide an update of my breast cancer journey since the diagnosis on 10/1/13.  (Brandy wrote about it in the October blog). Hmm, weird, I’m almost unsure where to start—I could write pages upon pages but I’ll provide a shortened summary for now.

After the diagnosis, I met with a team of several doctors to determine my treatment plan. Due to the size of the tumors and spreading of one, they all felt it best I enter chemo first to shrink the masses, with surgery later. I had my first chemo treatment on 10/28, starting with a combination of two drugs (A/C for short). There were many side effects to look out for, and four that affected me most were fatigue, nausea, blackened fingernails and of course, hair loss. My hair started shedding 11 days after the treatment; I was counting. My scalp also burned continuously—like that feeling when a relaxer has been left on too long. Imagine that sensation all day; not cool. It became unbearable so me, Brandy and my daughter Jasmine cut it low a few days later (instant relief!). Shortly after, the remaining hair started to look patchy from continued loss so we finally took it all the way down to bald where it remains today. Surprisingly, I wasn’t that shocked when I saw myself bald for the first time. Well, I take that back; I was shocked that my head wasn’t as big as I thought it was. ;-)  I condition my scalp daily in the shower to keep it healthy. J
I had four treatments of A/C, with the recovery time taking longer with each one. By the time I had my last on Christmas Eve, I was miserable. The upbeat, “I got this”, “oh happy day” feelings I tried to maintain were dissipating and I found myself getting more and more anxious for this entire experience to be over. Tears began to flow without warning (they still do), but for the most part, my days are positive.

I’ve moved on to weekly treatments of the third and last drug (Taxol). Three treatments in (out of twelve) and so far, it’s way less taxing on my body. No nausea, hallelujah. I’m not sleeping several days in a row after treatment as with the A/C, but instead I’m up the next morning and able to do my thing. Fatigue remains—if I run up and down the stairs once, it feels more like I ran up and down ten times.
Right now the most important issue for me is maintaining a healthy white blood cell count (WBC) so I can wrap this chemo up. I’ve missed a few treatments because my WBC was too low and chemo cannot be administered with a low count. To help maintain a good count, I’ve been prescribed shots of either Neupogen or Neulasta to boost WBC numbers. My dear Brandy, the BEST caregiver ever, injects the shots for me, usually in my stomach or thighs. Side effect of the shots is bone pain; ouch, it’s rather uncomfy.

The journey continues…we’re not yet at the halfway mark. When we moved to Cali last June, we certainly had no idea this would be part of our future. With so much change and uncertainty in such a short time, this hasn’t been the easiest transition. We’re doing our best at embracing this entire journey as it unfolds, and looking forward to what the future holds, praying and believing it’ll be on a positive upswing! We are SO GRATEFUL for the many, many prayers we’ve received—it truly helps to know your thoughts are with us.  We feel so loved! Thank you.
Until next time… J

Nikki Rashan ©January 2014

 

First haircut in November
January 2014

15 comments:

  1. You will continue to be in my thoughts. Wishing you a speedy recovery with less and less side effects along the way. I'm sure just sharing your story is helping someone else right now.

    Be well. :)

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  2. Thanks for sharing your story. You make reading this much easier with your light humor xoxo I love the both of you

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  3. you are so inspiring...blessings to you and your family :-)

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  4. You are my shero. Before long, this will be behind you, and we'll be sipping lemondrops. Thanks for sharing. P.S., I was also worried about the size of your head.:)

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  5. Nikki, thank you for sharing your story and May Gods light continue to shine in your eyes, in your smile and on your face as you move through this journey with strength and love. Praying with you. Your friend Tatia.

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  6. Nikki, you are so lovely and brave and I'm definitely keeping you and your family in my thoughts. I know you'll continue to get stronger everyday. Sending love and blessings your way. ♥

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  7. Shame on me for not knowing. I pray for your speedy and full recovery, amen, I pray that Jehovah through his son Jesus give you the strength and faith to fight, amen!!! Much love from Milwaukee, peace love happiness and good health to you and your family!

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  8. Nikki Rashan and Brandy Nasha I've been praying for you and will continue to pray.. Remember that everything works in God's Devine Order! Stay encourage and know that God is a healer. .. love you both!

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  9. Thanks for sharing! Continued prayers going up ♥Sybil

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  10. Tamara on behalf of B.BLYSS!January 29, 2014 at 10:34 PM

    As you both already know, you both are two of our favorite people. We love you dearly for some many reasons. You've been in our thoughts and prayers since well before the spirit carried you two to California and you will continue to be.

    Thank you for sharing your story with us as it continues to unfold. It's humbling to read your blog and facebook posts, and serves as an example of why love is so important to our lives.

    May God's love and positive strength continue to carry you through this journey.

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  11. Nikki, I am so ashamed in taking so long to write you. I don't have eloquent words to say, but will express what is in my heart. I pray for you daily. You and Brandy are the most beautiful souls I know. The love you two send out touches everyone. I am sending my love and prayers your way. Sorry for rambling.

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  12. Love you sis! You stay strong!! I will be praying everyday for you and Brandy!! Roof!

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  13. Greetings my sister of many words. This blog is beyond blessings not only to see you move through own personal journey, but also to uplift others whom maybe going through similar situation. I pray that you continue healing and also continue to utilize your artistic gifts... After all this is your true purpose... blessings to you always and your family:)

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  14. Nikki, you're such a strong, beautiful presence. Though saddening, I appreciate you sharing the day to day of this struggle. It makes it easier to know which prayers to ask for when sending love & healing through the atmosphere to you. So happy to see the effortless love & care the two of you exert to each other! Ok, 99% effortless ;) love & health to you both!

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